Legacy Tokens

At WMS 2023 in Charleston, South Carolina, USA, we launched our legacy tokens initiative. Instead of using Congress funds to create branded merchandise, which is not in line with our environmental sustainability ambitions, we decided instead to dedicate £10,000 to our Congress legacy. 

Our Local Organising Committee selected three charities based in the Charleston area to each receive a share of our £10,000 donation. You can read more about our 2023 legacy on the WMS website.

Our 2024 legacy

Following the success of our initial year, we are repeating our legacy tokens initiative for WMS 2024. Our Local organising Comittee are nominating four local good causes to each receive a share of £10,000. 

All four charities are patient groups supporting patients with neuromuscular disorders and their families. The charities are:

Asociace muskulárních dystrofiků (AMD) - with nationwide scope, AMD unites those affected by muscular dystrophy and other neuromuscular diseases. The organisation’s goal is to support children and adults affected by neuromuscular disease, help them integrate into society, provide the necessary information to maintain the best possible quality of life and promote the improvement of multidisciplinary care. It carries out educational activities in the social and health field, organises domestic and foreign rehabilitation stays and sports events and cooperates with national organisations with a similar focus.

You can read more about AMD Czechia on their website.

Parent Project Czech Republic - extending the work of the USA-based organisation with the same name, Parent Project is a patient organisation founded by parents whose children were born with Duchenne/Becker muscular dystrophy and other rare early-onset neuromuscular diseases. This important organisation brings together patients, their parents and other family members with the mission of promoting and defending the interests of patients and members, creating conditions for improving and ensuring a better quality of life, providing comprehensive care and supporting the availability of effective treatment.

You can read more about Parent Project Czech Republic on their website.

SMAci – a Czechia-based organisation supporting patients with spinal muscular atrophy (SMA), SMAci helps defend the interests of patients with SMA and their families and caregivers. As well as providing SMA information on the website and social media, SMAci provides telephone and in-person crisis intervention to SMA patients and their loved ones, as well as counselling and psychosocial support. They also communicate with healthcare institutions, insurance companies, other organisations, and stakeholders in Czechia and abroad and organise psycho-rehabilitation summer camp stays for children and young people with SMA.

You can read more about SMAci on their website.

Společnost CMT - with the aim of defending, promoting and fulfilling the interests and needs of disabled people with Charcot-Marie-Tooth disease, Společnost CMT works in cooperation with state and local government bodies in Czechia and international institutions. Projects include raising awareness of CMT issues, providing rehabilitation stays for people with CMT, their families and friends, and providing educational and advisory activities and related services to support equal opportunities for people with disabilities in all areas of society.

You can read more about Společnost CMT on their website.

How it works

When you arrive at WMS 2024 and visit the registration desk, you will be given a Legacy Token alongside your name badge and metro pass. You will receive additional tokens at each of the Industry Symposia you attend. The small wooden token features the WMS logo. We will have collection boxes for each of the charities mentioned above. You can select which of the charities you would like us to donate to on your behalf by depositing your token in the appropriate box. At the end of the Congress, we will count up all the tokens in each box and divide our £10,000 donation based on the votes of Congress delegates. We will share the information with you after the Congress and visit each of the charities to make our donations.